Clinerion Ltd Contact Details:
Main address: Margarethenstrasse 47 4053 Basel, Switzerland ,
Tel:+41 61 865 60 60 , E-mail: info(at) Website:

Clinerion Patient Network Explorer

Clinerion Patient Network Explorer

Optimized study design, precise site selection and faster patient search and identification for clinical research - in real time.

Clinerion Cookie Policy

Welcome to the Clinerion website. This website uses cookies. These cookies are used on your browser to understand how you are using our website. Using this website means you agree to our use of cookies. If you prefer not to have these cookies on your device, we advise you to disable them in your web browser settings. You accept the use of cookies by accepting this notice. You can read more details via our Privacy Policy page.

Privacy Policy page >

Investigation Of The Estimated Regional Distribution of Transthyretin Familial Amyloid Polyneuropathy (TTR-FAP) Disease In Konya

Poster by Sinan Fındık

TTR-FAP disease is an adult-onset severe autosomal dominant hereditary neuropathy. This study was planned to understand the epidemiology of TTR-FAP among patients who applied to Konya Selçuk University, and to determine the geographical distribution of this disease at local level data of province in RWE concept.

With this research, it was aimed to increase the awareness of clinicians in Turkey about TTR-FAP disease and to obtain epidemiological data of TTR-FAP patients in Turkey.

This RWE study was designed as a retrospective, single-center, longitudinal descriptive study; and aims to assess geographical distribution of probable TTR-FAP cases, where country-level epidemiological data is limited. Real-world data obtained from routine clinical practices at Selçuk University Hospital, between the years 2009 and 2018, in Konya province in Turkey were analyzed. The data was collected from HIMS in accordance with the Clinerion data structure.

Please fill in the form below to gain access to this poster.

Access the poster:


Personal Data Protection Statement

The information you provide allows us to provide you with information and updates on Clinerion’s products and services (the purpose). By submitting your details in the registration form, you give explicit consent that your personal details may be used for this and only this purpose by Clinerion and webinar partners, who may also provide you with information and updates on their products and services.

Clinerion, as the data controller and processor, will maintain the data for as long as the data is required for the purposes mentioned above, or until you withdraw consent as stated below. Personal data are not kept longer than necessary and are processed in a manner that ensures appropriate security and confidentiality, including for preventing unauthorized access to or use of personal data and the equipment used for the processing.

We will not sell or give away any personal information that you provide and only use it for the purposes stated above. You may request to view, correct, or delete your data in Clinerion’s database or withdraw consent by contacting Please note that withdrawal of consent shall not affect the lawfulness of Clinerion’s use of your personal data for the purposes mentioned above before withdrawal of consent.

The legal address of Clinerion: Clinerion Ltd, Elisabethenanlage 11, 4051 Basel, Switzerland. e-Mail address